Helping Others Know They Are Not Alone
--by Wotserface, posted Jun 10, 2008
For 20 years I have been a sufferer of IIH (Idiopathic Intracranial Hypertension), and for the better part of it had never known anyone with this illness. It wasn't until I lost my peripheral vision and some mobility in 2001 that I turned to the internet.
Eventually I managed to connect with other sufferers of this dibilitating illness, and when it became so bad that I had to be early retired, the groups I had found became a comfort. One such group I am now a moderator in, and I'm able to share my experience of IIH with the many members in it, and especially with the newly diagnosed. I try to help motivate and inspire them, and where possible to help them smile. Most of all I try to give them optimism and to show them that despite this illness, they are still capable and worthwhile people.
I keep in touch with them through the group, and email, and several in the UK by phone. Knowing that I am helping these people from my own experiences with IIH, however big or small. It's the least I can do!
YOU ARE MY KINDESS HERO OF THE DAY!
NONE OF US ARE ALONE...BUT IF WE DO NOT SPEAK OUT OR SEEK OTHERS THEN WE WILL NEVER KNOW....I AM SO GLAD YOU FOUND AND GAVE AND CONTINUE TO GIVE SUPPORT TO OURS.
I had a similiar experience with hearing loss but with the new technology, I have been blessed with the ability to hear again through a cochlear implant....a support group BUT mostly a few friends with similiar issues MADE ALL THE DIFFERENCE. WE SUPPPORTED EACH OTHER AND STILL DO LIKE YOU & YOUR GROUP!
Keep up the good work that you are doing....you do make a difference....and that's for sharing your story!